Sunday, June 27, 2010


yesterday the doctor asked if she could meet with both Cody and I; She started out just talking about how well Ellina is doing, for her age to be on a nasal cannula is amazing, no worries when it comes to breathing. But... yes we were just waiting for it. Ellinas heart, remember how Emmalin, baby A had a thickened outer edge on her heart? it made sense with the TTTS that it had been over worked, when Ellina had it that is what they thought also that it put stress on her when her sisters were lost. But now they are wondering, because they would have thought it would be gone by now or at least improved, it hasn't. Although the doctor is still saying it could be fine its something they want to watch very carefully. Because it could be something else like a congenital condition. No it isn't even close to for sure but if that is what it is it is bad. she said she would need a heart transplant and is not eligible for that for months. I am of course hoping and praying that is is just from the stress she was under being something that just needs time to resolve but as I keep saying now...let the worries begin.. again. I know Ellina is a fighter and that is where I get my hope that she will fight this too even if it is big


  1. Mishael, You and your family are in my prayers. I'm so sorry for your loss of Emmalin and Ellianna. Ellina is absolutely beautiful.

  2. My baby is a TTTS surviving triplet. He also has heart issues. He was diagnosed with Mild Hypertrophic Cardiomyopathy, they had us scared to death, we were also told it could be hereditary or congenital. I just want to let you know that Elijah is now 2 years old and his Cardiomyopathy has almost completely resolved!